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三位自閉兒家長皈信過程之生命史研究 - 新竹市東區某國中同年級三位自閉症生家長為例=Study of how Religious Believe Influence the Life History of Parents of Children with Autism - Cases of One Junior High School Located in Hsinchu
Author 石瑀喬 (著)=Shih, Yu-chiao (au.)
Date2016
Pages123
Publisher玄奘大學
Publisher Url https://www.hcu.edu.tw/hcu/zh-tw
Location新竹市, 臺灣 [Hsinchu shih, Taiwan]
Content type博碩士論文=Thesis and Dissertation
Language中文=Chinese
Degreemaster
Institution玄奘大學
Department宗教與文化學系碩士在職專班
Advisor張蘭石
Publication year104
Keyword自閉症=Autism; 生命史=life history; 家長壓力=parents’ stress; 皈信過程=religious conversion
Abstract自閉兒的行為表現會受到家長照護、專業的政府教育機關、醫療系統、親友互動等項度影響,其中自閉兒因長期與家長的接觸最親密,所受到的影響也是最大。自閉症家長照護自閉兒是一輩子的事,對於異質性極高的自閉兒,家長在照護上容易陷入巨大失落與無盡期待中,家長們最根本的期望是自閉兒能「正常」,但這種不可能的任務最終得到的是無止盡的失望,當人(教育)或藥物(醫療)無法改變現狀時,自閉兒家長往往轉尋心靈層面的支持,此時生活周圍常出現的各宗教系統便是最容易改變家長心思意念的途徑之一,研究者於實務發現,在各類身心障礙學生中,自閉兒家長相較其他障別的家長更容易有信仰,在照護自閉兒過程中也常會帶著孩子接受宗教信仰或實際參與儀式當中,家長甚至擔任重要宗教人員。研究者不禁思慮:宗教於自閉兒家長之生命歷程中是否確實扮演了正面角色?這是目前社會須探討的問題。研究者也發現宗教人員在初期的影響遠高於宗教教義,因此神職代言人的言行舉止,都應經嚴格檢核省視。
本文採取理論探討與深度訪談雙軌的研究法,在理論探討方面主要是著重身心障礙家長所面臨各方面導致的壓力、宗教支持及生命史的探討,在宗教的理解上採取宗教批判實在論的觀點,深入探討自閉兒家長在皈信過程中生命史的改變及宗教支持的層面及廣度。

Parents, school education, medicare and interaction with families, that will influence the personality of autism. One of the most important factors is parents, they have to take care their children whole life. Parents hope they can return back to normal status of mind, but in fact autism can’t. So parents of autism is easy to fall into endless expectations and disappointments, especially for significant heterogeneity of autism. That’s why parents of autism will find religious support in spirit. Research on disabled practice, the parents of autism are easy to have religious beliefs than other kinds of disabled. Usually, they will bring their children with them to join the activities of religious. In this paper, researcher finds the workers in religion represent an important role than doctrinal theology in the early stages of religious beliefs. So holy man should pay attention to own words and deeds.
Mandala Model of Self and In-deep Interview are the major research methods that be used in this paper, which focus on the correlation of parents’ stress, religious conversion and life history. In deeply study the parents of autism their life history change in religious conversion via concepts and theories of critical realism, and the depth and breadth of religious.
Table of contents第一章 緒論 1
第一節 研究動機與問題意識 1
第二節 研究目的與方法 4
第三節 關鍵概念之相關研究 11
第四節 研究設計 18
第二章 自閉兒家長的皈信生命歷程 24
第一節 鯨媽媽的故事 24
第二節 象媽媽的故事 31
第三節 鶴媽媽的故事 39
第三章 個案皈信前分析與討論 45
第一節 婚前居所 45
第二節 探索求職 51
第三節 婚後現實 56
第四章 個案皈信時分析與討論 64
第一節 初為人母 64
第二節 皈信萌芽 73
第五章 個案皈信後分析與討論 79
第一節 皈信後期 79
第二節 皈信後期 94
第三節 家庭轉變 103
第六章 研究結論與建議 107
第一節 研究結論 107
第二節 研究限制 108
第三節 未來建議 110
參考文獻 113
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Created date2022.06.23
Modified date2023.01.06



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